Did you know that 1 in 10,000 people have Rett Syndrome worldwide? Although considered rare, many families are affected by Rett Syndrome in Saskatchewan. The Saskatchewan Rett Syndrome Association supports people affected by Rett Syndrome in the province, offering information and support to newly diagnosed or helping pay for equipment down the road. They help more than 25 Saskatchewan families every year through their extensive advocacy.
Here is what they would say…
Many researchers worldwide try to improve people’s lives with Rett Syndrome, whether with new therapies or symptomatic treatment and find a way to reverse the disease! It can be difficult to wade through all the pertinent information with this changing research. However, finding trusted news is one step to simplifying this journey.
There are national and international Rett syndrome conferences help connect families with the research. Every year we send one to two families to a discussion on a reconnaissance mission of sorts, gather info and return home to tell everyone. As a banded community, we can make the tiresome information gathering easier.
What does SRSA raise money for?
- Every member has an allotted sum of money they can apply to receive for an unmet need.
- We sponsor families to go to conferences focused on Rett syndrome.
- We donate money to Canadian research
- Recently, we collaborated with other Canadian associations to bring a series of webinars focusing on AAC to our members and gave each family sessions with an SLP team.
Saskatchewan Rett Syndrome Association has donated more than $30,000 to families and research affected by Rett Syndrome. To support the Saskatchewan Rett Syndrome Association, check out their website https://saskrett.com/ and donate your SaskWatch points.
To donate your Reward Points to the SRSA, once you log in to your SaskWatch account, click on ‘SaskWatch points’ at the top of the page. Then click on ‘Redeem’ and choose ‘Donate to Charity’ (a Minimum of 150 points is required for point redemption).